A very big thank you to Emily for sending in this great pic of LG327 when she spotted it earlier today! We are so grateful to the owner of the plate and to Emily, who also drives with our Lou Gehrig license plate - they are both helping significantly just by simply driving. We 💚💙 to see these plates on the road because with each, it means more ALS research is being funded and more equipment is getting delivered to individuals living with the disease now. . Are you a Massachusetts driver who isn't driving with the Lou Gehrig plate but would like to? It's simple! Just go to https://alsplate.org/ to learn more or to any full-service RMV in the state, where they are fully stocked. . How much does it actually fund? A LOT! The plate fee is $40 and the initial fee is distributed as follows…$12 covers the cost of manufacturing the plate and $28 goes directly to ALS ONE to support research and care. Upon renewal of the plate after two years, the ENTIRE special plate fee ($40) goes back to ALS ONE. We are so grateful to the state of MA and to all who drive to help us END ALS. . What's on your plate? . #ALS #ALSlicensePlate #ALSPlate #LouGehrig #LouGehrigPlate #DriveToEndALS #EndALS
ALS ONE
Fundraising
Whitman, MA 506 followers
United in ALS research and care. We're not done until we're ALS DONE.
About us
A partnership of world-leading ALS researchers and caregivers who have united to advance critical scientific studies towards treatments leading to an ultimate cure for ALS while simultaneously providing essential equipment and care resources to individuals who are currently living with the disease. The joining of forces and continual fundraising through events and philanthropic donations help to cut bureaucratic red tape to combat the disease more efficiently and effectively for all. Since founding in January of 2016, ALS ONE has raised over $14M, making measurable & meaningful advancements while helping families in Massachusetts, New England, the northeast, and nationwide. Our founder, Kevin Gosnell, lost his battle to ALS in 2016 but we're growing stronger than ever. Our partnership includes: • Dr. Robert Brown, MD, DPhil, Professor & Chair of Neurology at UMass Memorial Medical School. • Dr. Merit Cudkowicz, MD, MSc, Chief, Neurology Department - Director, Sean M. Healey & AMG Center for ALS Mass General Hospital (MGH) and Julianne Dorn Professor of Neurology Harvard Medical School. • James Berry, MD, MPH, Associate Chief of Neuro-therapeutics and Chief of the Division of ALS and Motor Neuron Diseases at MGH and Director of the MGH Neurological Clinical Research Institute (NCRI). • Sabrina Paganoni, MD, PhD, Co-Director of the Neurological Research Institute (NCRI) at MGH, physician scientist at the Healey & AMG Center for ALS, and Associate Professor at Harvard Medical School at MGH. • Dr. Fernando Vieira, MD, Chief Executive Officer and Chief Science Officer at The ALS Therapy Development Institute. • Ron Hoffman, Executive Director and Founder of Compassionate Care ALS. Staff: Jennifer DiMartino, Executive Director Ashley Corbin, Event Director Contact: Phone: 781.523.3304 Email: info@alsone.org Address: 8 Industrial Way, Whitman MA 02382 Board of Directors: Mark Sullivan, Chairman of the Board Matt Hogan Michael Braun Jennifer DiMartino Scott Gosnell
- Website
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http://www.alsone.org
External link for ALS ONE
- Industry
- Fundraising
- Company size
- 2-10 employees
- Headquarters
- Whitman, MA
- Type
- Nonprofit
- Founded
- 2016
- Specialties
- ALS, Lou Gehrig's Disease, Research, Neurology, Medical Equipment, Fundraising, and Support
Locations
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Primary
8 Industrial Way
Whitman, MA 02382, US
Employees at ALS ONE
Updates
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ALS AWARENESS MONTH's FACES OF ALS Gallery of Courage and Strength. Sara Bennett, 37, of Grove City, OH. Living with ALS since 2023. “ALS has changed the way I have experienced parenting. But it can't take away my love, or how I show up for my kids. As long as I am around, I am going to continue to see the good, and be good to those I love and I will move my body as much as it will let me! I've worked hard over the last year to help support others living with ALS, I've been sharing my journey and more on my Instagram page- @theanandapivot.” 💚 Sara . To submit a tribute about you or for your ALS hero, simply click the link in our bio or go to bit.ly/FOALS24. All tributes are submission-based, and we will honorably include all who would like to be featured. . #ALS #ALSawarenessMonth #FacesOfALS #SaraBennett #GroveCityOH #ALSMom #ALSWife #ALSWarrior #ALShero #Fighter #TheAnaNDAPivot #FacesOfCourage #FacesOfStrength #May #EveryMonth #pALS #cALS #Courage #Strength #Honor your #ALShero #AnyTown #OneWithALSisTooMany #ThisIsWhyWereHere #EndALS
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Please join us this Thursday, May 30th at 5:00 pm EST for our weekly Healey ALS Platform Trial update webinar. This week, hosts Merit Cudkowicz, MD, MSc, and Sabrina Paganoni, MD, PhD of the Healey Center for ALS at Mass General Department of Neurology, and founding and lead Platform Trial investigators, will be joined by guest speaker, Dr. Bob Bowser from Barrow Neurological Institute for a presentation on Biomarkers in ALS research. As always, the webinar is free and all are welcome. Register at: https://bit.ly/3KKsme2. Questions: If you have questions or comments that you would like addressed on this week's call, we ask that you kindly submit in advance by emailing: healeyalsplatform@mgh.harvard.edu. #ALS #PlatformTrial #HealeyHope #ALSONE #Unity
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On this Memorial Day weekend, and every day, we honor with gratitude all who made the ultimate sacrifice for our freedom. . #MemorialDay #NeverForget #Heroes
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REGISTRATION IS NOW OPEN FOR THE 5TH ANNUAL BERKSHIRE RIDE FOR ALS! Join us on September 7th for the 5th Annual Berkshire Ride For ALS! We are grateful to the Berkshire Community for helping us grow every year, and this year we are excited to be partnering with the City of Pittsfield with the location of the Controy Pavilion to host the start and finish of the ride! In addition to the 70-mile route for both cyclists and motorcycle riders, we have included a 10-mile route to encourage any age and level of training to be part of this great event! Invite your friends and family to join you to ride, or to cheer you on at the finish line. We will be having food, drinks, live music and more as we celebrate each person who is part of making it a memorable and impactful day on the ALS community. A special thank you to John and Sara Barrett spearheading this ride in memory of Sara’s dad, Carey Hinkley and honoring his passion for biking for a cause. Each mile helps to support ALS research and care, and raising these funds gets us one step closer changing our name to #ALSDONE. Registration and sponsorships are now open on the website, sign up today and we look forward to seeing you on September 7th! https://lnkd.in/e75WCsFA #ALS #berkshirerideforals #berkshires #bikeride #10miles #70Miles #EveryMileMakesADifference #ALSONE #ALSDONE #ENDALS
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ADDITIONAL TICKETS OF LG4 DAY FOR PURCHASE! We are so excited that all of the tickets we were given for the upcoming LG4 Day on June 2nd have been given out! Because many of you have asked about also attending the game, we have worked with Fenway to have more tickets that are available for anyone to purchase in the sections where we will be sitting! The custom link to these tickets will be available online through THIS FRIDAY, May 24th. Click the link, and join us for an amazing night of memories as we cheer on the Red Sox and raise awareness for ALS! https://lnkd.in/eGF6VNZ8 #ALS #LG4 #LG4Day #LouGehrig #LouGehrigDay #LG4DayFenway #Boston #RedSox #FenwayPark #ALSCommunity #EndALS
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We would love you to join us Thursday, May 23rd at 5:00 pm EST for our weekly Healey ALS Platform Trial update webinar with hosts Merit Cudkowicz, MD, MSc, and Sabrina Paganoni, MD, PhD of the Healey Center for ALS at Mass General Department of Neurology, and founding and lead Platform Trial investigators. Dr.'s Cudkowicz and Paganoni, will give the latest updates and answer questions from the audience. As always, the webinar is free and all are welcome. Register at: https://bit.ly/3KKsme2. Questions: If you have questions or comments that you would like addressed on this week's call, we ask that you kindly submit in advance by emailing: healeyalsplatform@mgh.harvard.edu. #ALS #PlatformTrial #HealeyHope #ALSONE #Unity
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We are 20 days in to ALS AWARENESS MONTH and we are just $10,000 away from meeting our matching gift challenge which was set forth by an anonymous donor who has been living with ALS for four years. This inspiring man wants to motivate MORE people to join in the fight against ALS, so he has set forth two criteria for us for his May Match to help END ALS: 75% of the donations must come from NEW DONORS and we must only include the first $1,000 from a single donor in our match (to inspire more people to donate, rather than fewer with more funds). Every bit adds up and even with those two parameters, we are just $10K to our goal - will you help us get there? The ALS clock is ticking and there is no time to wait. We humbly ask you to please share with your network as well. Donations of all sizes can be made directly to ALS ONE or to any of our events, by clicking https://alsone.org/ . #ALS #ALSONE #ALSawarenessMonth #50K #MatchingGift #ALShero #ALSresearch #ALScare #NewDonorsNeeded to #Help #ENDALS #PleaseShare
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ALS AWARENESS MONTH's FACES OF ALS Gallery of Courage and Strength. Esteban Alterman, of Jerusalem, Israel. Lost to ALS in 2020 at age 56. My brother, Esteban Alterman, my hero, lost his 13-year battle to ALS in June 2020. He inspired me every day and still does. Esteban was a renowned photographer who was born in Argentina and lived in Israel with his wife and two children. You’ll always be my hero, Esteban! 💚 Elena . To submit a tribute about you or for your ALS hero, simply click: https://bit.ly/FOALS24. All tributes are submission-based, and we will honorably include all who would like to be featured. . #ALS #ALSawarenessMonth #FacesOfALS #EstebanAlterman #Jerusalem #Israel #Argentina #Photographer #ALSHusband #ALSDad #ALSBrother #ALSAngel #ALShero #Fighter #ALSWarrior #FacesOfCourage #FacesOfStrength #May #EveryMonth #pALS #cALS #Courage #Strength #Honor your #ALShero #AnyTown #OneWithALSisTooMany #ThisIsWhyWereHere #EndALS
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ALS AWARENESS MONTH's FACES OF ALS Gallery of Courage and Strength. Lynette de Salme Garcia, of Canyon Lake, TX. Lost to ALS in 2020 at age 50. Our beautiful and loving sister Lynette lived courageously and gracefully with ALS for 5 years until her passing in May of 2020. She was a talented artist making everything around her beautiful. She found a peace and calmness in her love of nature. Her bright light shines on in her 2 boys and in all of our hearts. With much love, Lynette’s sisters, 💚 Colleen and Teri To submit a tribute about you or for your ALS hero, simply click: https://bit.ly/FOALS24. All tributes are submission-based, and we will honorably include all who would like to be featured. #ALS #ALSawarenessMonth #FacesOfALS #LynettedeSalmeGarcia #CanyonLakeTX #ALSAngel #ALShero #ALSmom #Sister #Fighter #ALSWarrior #FacesOfCourage #FacesOfStrength #May #EveryMonth #pALS #cALS #Courage #Strength #Honor your #ALShero #AnyTown #OneWithALSisTooMany #ThisIsWhyWereHere #EndALS